What it’s like to have a baby with Edwards’ syndrome – My Story – Chloe and Penelope | NHS

This video contains sensitive content that some may find upsetting.

In this video, Chloe talks about her daughter Penelope and what it’s like to have a child with Edwards’ syndrome.

Edwards’ syndrome, also known as trisomy 18, is a rare but serious condition.

The symptoms, and how seriously your baby is affected, usually depend on whether they have full, mosaic, or partial Edwards’ syndrome.

You can find out more about Edwards’ syndrome at https://www.nhs.uk/conditions/edwards-syndrome/

You can get support and advice from charities such as Soft UK
https://www.soft.org.uk

00:00 – 00:51 Intro
00:52 – 02:09 Penelope’s birth
02:10 – 05:32 Life with Penelope
05:33 – 06:39 Life after Penelope
06:40 – 07:42 Advice
07:43 – 09:35 Life now

The views expressed and experiences described by people featuring in our stories are their own, and are not endorsed by us. They may not always reflect current NHS or government guidance.