Having a child with Edwards’ syndrome (trisomy 18) | NHS

Three families tell their story of what it is like to have a child with Edwards’ syndrome.

Edwards’ syndrome, also known as trisomy 18, is a rare but serious condition.

A baby with Edwards’ syndrome has 3 copies of chromosome number 18 instead of 2. This affects the way the baby grows and develops.

This video contains sensitive content that some may find upsetting.

00:00 – Diagnosis
02:09 – Memory box
03:10 – Mosaicism
05:13 – Processing results
06:50 – Life now
08:08 – Planning for end of life
09:22 – Telling a sibling
10:28 – Building further memories
11:12 – Being prepared for the future
12:32 – Grief
15:42 – Family
16:07 – Support

You can find out more about Edwards’ syndrome at https://www.nhs.uk/conditions/edwards-syndrome/

You can get support and advice from charities such as Soft UK
https://www.soft.org.uk